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World Sight Day 2022

Journée mondiale de la vue

October 13, 2022

Sight is one of our five senses, and it is hard to imagine what it would be like if we lost our vision. Yet this is what happens to patients with optic neuritis (ON), the most common manifestation of neuromyelitis optica (NMO) and NMO spectrum disorders (NMOSD) in adults, as well as of myelin oligodendrocyte glycoprotein antibody disorders (MOGAD).

NMOSD and MOGAD are rare inflammatory diseases of the brain and spinal cord

NMOSD and MOGAD manifest as flare-ups characterized by the sudden onset of various symptoms such as:

  • ON, acute transverse myelitis, nausea, vomiting, and hiccups persisting for more than 48 hours in the case of NMOSD.
  • ON, acute disseminated encephalomyelitis (ADEM), transverse myelitis, encephalopathy with epileptic seizures, brain stem disorders with balance disorders, speech disorders, swallowing disorders, and double vision in the case of MOGAD.

Flare-ups can be severe, but, apart from in exceptional cases, these diseases do not evolve between episodes. Treatment of the flare-ups usually results in good recovery, although disabilities persist in rare cases. However, to be properly treated, flare-ups must be recognized as being symptoms of NMOSD and MOGAD.

Due to the lack of knowledge of these rare diseases and their variable symptoms, inaccurate or delayed diagnosis is unfortunately common, and can lead to severe irreversible disability, such as blindness.

Support of Santé Active Edition – Synergy Pharm

We hope that this website will also increase the visibility of the association and help raise awareness and knowledge of these rare diseases, allowing them to be better diagnosed in the future so that the patients affected have fewer sequelae.